Information for parents and carers
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Craniofacial Team – PIAG 162 (244kB)
Clinical Nurse Specialist
The role of the clinical nurse specialist is to be directly involved with craniofacial patients and their families from the first clinic visit admission, through surgery to discharge. The nurse acts as a link between patients, parents and the multidisciplinary craniofacial team.
Speech and Language Therapist
The role of the speech and language therapist is to assess and manage speech,
language and feeding difficulties that are related to the craniofacial condition.
Clinical Geneticist
The clinical geneticist is part of the team because some craniofacial conditions are
caused by changes in genes and some may run through the family.
Ear, Nose and Throat surgeon (ENT)
The ENT surgeon will assess and manage your child’s airway, breathing and surgical management of any hearing loss.
Clinical Psychologist
The clinical psychologist’s role within the team is to offer assessments and support to children, young people and families in relation to a variety of issues, such as development, appearance concerns, bullying and teasing, making decisions about treatment and surgery and preparation and support pre and post- surgery.
Ophthalmological Surgeon
The ophthalmological surgeon assesses and treats any eye problems relating to the craniofacial conditions. Where appropriate, the team may also liaise with local services that may be the most appropriate for overseeing and providing the on-going care of your child.
Respiratory Team
The respiratory team assesses and investigates your child’s sleep pattern and
breathing.
Orthodontics:
The orthodontics will assess and manage the way the teeth and jaw grow.
Neurosurgeon
The Neurosurgeon is involved in the treatment of Craniofacial conditions that may or may not affect the growth of the brain.
Plastic Surgeon:
Plastic surgery aims to correct complex cosmetic and functional abnormalities of both soft tissue and bone using a wide range of reconstructive techniques.
This information can be made available in other languages and formats if requested.
Alder Hey Children’s NHS Foundation Trust
PIAG: 162