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UPDATE Statement from Alder Hey Children’s Hospital – 25th April 2018

UPDATED

25th April 2018

We note today’s ruling from the Appeal Court which has rejected both applications to take Alfie to Italy.

Our top priority is to continue to provide Alfie with the care he deserves and to ensure his comfort, dignity and privacy are maintained at this time.

 

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24th April 2018

This evening the High Court again ruled that it is in Alfie’s best interests to continue with the end of life care plan developed by the clinical team who have cared for him throughout.

Our top priority therefore remains in ensuring Alfie receives the care he deserves to ensure his comfort, dignity and privacy are maintained throughout. This includes working closely with Kate and Tom as they spend this precious time together with him.

We would be grateful if respect and consideration is shown to all our staff, patients and families at the hospital at this difficult time.

 

Notes to editors

Royal College of Paediatrics and Child Health statement on the Alfie Evans case

The Alfie Evans case is extremely difficult for all involved; heartbreaking for his parents and emotionally challenging for the doctors and nurses involved in treating and caring for him.

As healthcare professionals involved in the care of babies, children and young people, the priority has to be the child.  Every action and decisions is taken in the best interests of the child, and decisions on care, including the withdrawal of treatment, are always made with the involvement of parents.

We can’t comment on the specifics of the case – only the medical team treating Alfie, and the legal team, will know the exact details and they are bound by patient confidentiality.

However, we feel it is important for the public to know that decisions to withhold or withdraw treatment from a child are not made lightly.  In the UK we are fortunate to have a clear and compassionate framework to guide practice which includes three key sets of circumstances when withdrawing life-sustaining treatment may be considered. These are:

  • If treatment is unable or unlikely to result in the child living much longer
  • Where treatment may prolong life but will cause the child unacceptable pain and suffering
  • If an older child with a life limiting illness repeatedly makes it clear they do not want treatment and this decision is supported by their parents and doctors.

Decisions on whether to withdraw treatment from a child are unfortunately ones that need to be made frequently. The model is always for doctors to work closely with parents to agree on the best course of action for the child. In the vast majority of cases an equal decision is made to withdraw treatment and  it is rare that there is disagreement. The cases where this is a significant difference in view are the ones that grab the media headlines.

In difficult situations such as these, and amongst the plethora of voices and opinions, it is important that the public know how such decisions are made.

Professor Russell Viner, President, Royal College of Paediatrics and Child Health

 

 

 

Your comments

  • I feel compelled to contact you to express my heartfelt encouragement in the light of all the abuse the doctors and nurses caring for Alfie Evans have received. Whilst appreciating the trauma this experience is for Alfie’s family, I am appalled by the way his medical team are being treated. This must be a heartbreaking case for all who are caring for him and I am sure you have acted in his best interests. Please take heart – you are all doing a wonderful job.

  • I think all the support and care that all of the staff at Alder Hey is amazing and feel sad people are unpleasant to you. You do not deserve that. Nothing but admiration for your work from so many people. GRATITUDE.

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