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Henry’s Story Part Ten – New Year, No Frame, New Start!

frame-offIt’s hard to think that Henry has had his frame on his leg for 15 weeks. But that’s come to an end as his frame came off this week. Hoorah!

It was a difficult time for Henry over Christmas as we discovered another pin site infection at the top of his leg a week before Christmas – thankfully he had already started back on the antibiotics so the reaction to the infection was not as great as his previous infection where his foot swelled. Over Christmas I had to do Henry’s dressing changes as we went down to my mum’s in Milton Keynes.

It was pretty scary doing the dressings, even though I was confident in what I was doing after watching Rose and Alison doing his dressings over the last few months. Thankfully my mum had also observed Henry’s dressing changes so she was able to assist me. That was really helpful because while Henry was generally very good at staying still (providing he had his Nintendo DS to keep him distracted!), he hated having the infected pin cleaned and was squirming everywhere – definitely a two person job!

Unfortunately, four days before Henry was scheduled to get his frame off we discovered that Henry had tonsillitis! Argghhh! As soon as I got back from the GP’s I phoned Rose to explain the situation. I was advised to ensure he got every dose of the penicillin he’d been prescribed for his throat, and to only bring him in for the day case if he was well in himself. Ultimately the decision as to whether they’d go ahead with the procedure was going to be down to the anaesthetist. Time to cross fingers.

Trying to explain to Henry why his frame might not come off as planned was really hard as he’d already been counting down the sleeps until ‘Mr Metal’ came off! I was trying to stay positive for him, but he needed to know that it might not happen – just in case.

After 15 weeks, Henry finally had his frame removedFortunately over the weekend Henry really perked up and seemed more himself, so we packed his back with PJ’s, pooh bear and his DS and crossed our fingers! When we got to K1 – Alder Hey’s day case ward – I let the nurses know straight away about the tonsillitis and I could tell from their faces that they weren’t sure if the procedure would go ahead. When the anaesthetist came to see us he asked me and Henry lots of questions and then gave us the news that he would go ahead but only because Henry was feeling better, it was such a short procedure and no new trauma would be caused. Phew.

Waiting for Henry to come out of theatre was horrible, but thankfully it was only a short wait was compared with when he got the frame on! He was quite disorientated initially coming round from the anaesthetic and seemed confused by the plaster on his leg, but once he’d come round a bit more he was fine and not in any pain.

Having been home for a few days now, it is so nice to see Henry move around more confidently, but the main thing is that he’s not in any pain now and he’s actually sleeping right through the night – which is a huge relief for us all.

Henry’s thoughts

I wasn’t sad but I wasn’t happy I was just in-between about getting my frame off. I named my frame Mr Metal. I was fine going in to get my frame off; I enjoyed playing table football with my sister Melissa in K1. It’s very different having the plaster on because people can sign my cast. My family, friends from school and my old teacher have signed it or drawn a picture. I can do more stuff now and have been back to school for the full day. I can also get trousers on now so my leg is fully warm and I can put a big sock on too.

Henry’s story continues soon. You can read previous parts of the story here.

Sarah works at Alder Hey and is telling hers and Henry’s story to help raise awareness of Bilateral Talipes (club feet). If you enjoyed reading this, or if you are a parent in a similar situation, we’d love to hear from you in the comments section below.

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