Children and young people from Liverpool with Cystic Fibrosis are seen in the multidisciplinary Cystic Fibrosis clinic at Alder Hey which runs every Wednesday morning.
Clinics are organised according to what bacteria children grow on cough swabs and there is also an Early Years clinic for younger children.
Cystic Fibrosis Network
Alder Hey provides shared care together with a network of 12 district general hospitals across the North West, North Wales and the Isle of Man looking after over 280 children and their families. The multidisciplinary team from Alder Hey joins the local team in over 42 peripheral clinics per year. The CF shared-care clinical network established from Alder Hey is described as one of the best model of CF care in the UK.
We have close links with the adult Cystic Fibrosis team at the Liverpool Heart and Chest Hospital who look after all adults with Cystic Fibrosis in the region.
What happens when I come to clinic?
You will have your height and weight measured.
If you are 5 years or older we will measure your lung function, looking at how much air you can blow out and how quickly. Find out more on the lung function page.
You will be seen by the dietician, physiotherapist, doctor or nurse specialist and can also see the psychologist. When you see the physiotherapist, you will have a cough swab taken or give a sputum sample if you are able to.
Sometimes we offer you or your parents the opportunity to participate in research projects which might be a local study or a national study. This helps us find out more about cystic fibrosis how it affects children and young people
The CF Trust is the national Cystic Fibrosis charity for the United Kingdom. The charity funds research into Cystic Fibrosis and provides information and support for children and their families.